Cystic Fibrosis Blog & Organ Donation Awareness

Welcome to my blog! I write about life with CF, documenting my journey whilst waiting for a double lung transplant. I like to think of this as an "interesting, transient time" in my life! Sure, there are a few 'bumps' in the road and life can be very difficult, but if you can't laugh what's the point carrying on? This blog is dual purpose - firstly to raise awareness of organ donation and secondly as a diary of sorts. The aim being that I can look back when I'm feeling a lot better and laugh about how things used to be.

Cf patient Helen and her dog on a mobility scooter

My first mobility scooter!

As much as I like to think of myself as independent and my stock answer for people asking me how I am is ‘ok-fine- and-you’, I have to admit that my body really does have limitations. These limitations now mean I’ve stopped doing a lot of things I used to enjoy. My ability to cover much ground at more than a snail’s pace is one of these. After a particularly

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But You Look So Well - Cystic Fibrosis Blog | Blogging about my life with CF whilst I wait for my life-saving double lung transplant. ยฉ Helen Roper and But You Look So Well, 2020 copy right notice: Unauthorized use and/or duplication of this material without express and written permission from this siteโ€™s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Helen Roper and with appropriate and specific direction to the original content.