But You Look So Well | CF Blog
Cystic Fibrosis Blog – A journey to lung transplant
Lung Transplant Clinic – Pre-Transplant Appointment I visit my Transplant Centre (The Queen Elizabeth Hospital in Birmingham) every three months as I am on the ‘active list’ for lungs. This means at any point I could be called and told they potentially have some lungs that may be suitable for me. I mention the word ‘potentially’ as there are still many reasons why the organs might not be transplanted at
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Organ Donation Law Changes To ‘Opt-Out’ Today is a big day in the transplant world. 20th May 2020. The date that the presumed consent law comes into effect (for the UK) also known as Max and Keira’s Law. I like a good date. Not a romantic date, although one of those would be nice too, especially considering the current climate. But a date which looks good written down numerically. No
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Organ Donation Law Changes After many(!) weeks in hospital, I got to spend six days at home! Yes, six whole days! Within two days of coming off the ivs, my sinuses flared up again and as per usual started infecting my chest. At this time I was connected by BBC Radio Oxford to give to see if I would be willing to give an interview. This would be a follow
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Before Christmas I had been contacted by the NHS Blood and Transplant Press Office to see if I was willing to share my story. They asked me some questions about what it was like waiting for a transplant, how my life was impacted and my hopes for the future. I thought it was worth sharing the questions and answers here. What is it like waiting for a lung transplant? When
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